Hi everyone! I have been dealing with the wonderful” other” symptoms of fibro for over 5years and dealing with the pain,memory loss,stuttering and many more symptoms for over 3 years. I would not wish this on anyone. I am not working and have a husband I feel has trouble understanding. I am sending gentle hugs to all those who may need it today!!
Hang in there….I have 2 daughters with it one is 21 has had it since 9th grade and then my middle daughter began symptoms for 3 years but diagnosed about 1 year ago. It so crazy….both daughter loved sports and chose to continue to play soccer the whole time to their senior year… My middle one is now a senior and cries after every game in terrible pain, but her coach is very understanding and so are the players on her team…Alot dont understand!
i really enjoying the site, I do not feel alone because we all understand how this diseases have affecting us for the rest of our life since there is no cure. I am severe hard of hearing that know sign as asl marriage with 4 children and 4 grandchildren. Now I been told I am nasty, lazy because that Fibromyalgia ruining my life and now I have my children, my ex step daughter look down on me and they are not even in my shoes. They had no clue, I had to take the depression medications, sleeping pills and pain to maintain my life, if I had not take those, I would be thousand time worse. I am not like everyone else who can get up early in the morning feeling fresh, or have the energy like my kids had. I do not want to wake up with body pain, headaches and depression and worse of all, no energy and tired very easy. Sometime Fibromyalgia make me do not want to do anything when I have an off day. Do I want all of that? No I do not… That Fibromyalgia had change my life from good to bad and they will always judge me before they know how much a struggle that I am trying my very best to be as normal as possible. Life is a curse. I wish my children understand that I can’t be a perfect mom beside that words saying, “I can’t stand her or I dislike her” cause I can not be as normal as others. This Fibromyalgia is really affecting my life that no matter how much I tried to be happy, it had fail.. Life is not fair. I hope to god that no one will get those in the future because once you have it, it will be a nightmare forever.
Hi Diana – there really isn’t anything that I can do that will do what we all want, that is: wave a magic wand and make it all go away. Just know, please, that you are not alone (even when it feels like it) and you are always welcome here.
Grab the good moments when you can xx
You know, I’ve been wondering. What does the butterfly stand for?
What ever it is, I love following your blog! I think you were following my old one “A girl and her illness”
The purple butterfly is a symbol of Fibromyalgia awareness – I don’t know why (and nor does anyone else, it seems) although I wrote a post on why it could be:
I wana dress like her, like blue longsleeve, purple tshirt, jeans, sneakers, purple hair lol maybe afoam butterfly on a stick :p
Maintaining purple hair is really difficult – I know, I tried!
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