Most days, I get a message or comment from some-one who is lacking support from their nearest and dearest. Sometimes, it’s because you hide your pain, or you haven’t asked for help. Sometimes it’s because they just don’t get it.
I made this video (with attached letter) because I am lucky enough to have a Mommy who loves me and tries to understand. (Sometimes I’m not so sure about the rest of the family.) But, because of this, these messages/comments upset me so much. Friends and family are supposed to be there for whenever you need them.
Friendship is for life. It involves an exercise of choice not compulsion. This is what makes it the purest of all relationships. However, you must choose your friends carefully. And cherish and nurture the friendship for a lifetime. It is not difficult to find friends. The tough part is to honor the friendship.
I’m hoping that presenting these people with this letter (or something similar) and the accompanying video might help.
Dear <insert name>,
As you know, I’ve been sick for a while now. You’ve seen me – you know what I go through; but somewhere along the way, we seem to have lost the compassion and empathy required to enrich our friendship and take it forward, through even the hardest times.
I am IN those hard times now, and I need your friendship and support.
I am including a link to a video (http://youtu.be/jNk-St6_bXg), which I would like you to watch. It won’t tell you about diagnoses, symptoms or treatments – instead, it tells you what I need from you, right now.
Please watch it and please try to understand.
Reblogged from Dr Rodger Murphree
Fibromyalgia is Real
Because you have an illness that’s hard to “prove,” loved ones may secretly convict you of hypochondria or laziness. You may be told, “it’s all in your head.” You may be urged to exercise or lose weight or get more rest. Physicians can be worse. If they believe the condition exists at all — and some don’t — their first impulse is to mask the symptoms with prescription drugs. Patients often end up on a medical merry-go-round, seeing doctor after doctor after doctor, trying drug after drug month after month, year after year, with little to no relief. Patients end up more confused and disoriented than ever, often concluding, “Maybe I am crazy, after all.”
For most of the world, it’s a common little phrase. But for people who have fibromyalgia or chronic fatigue syndrome (or both), it’s amazingly powerful, not to mention rare. The traditional drugs of choice for fibromyalgia, antidepressants (Cymbalta, and Savella), anticonvulsant medications (Lyrica), muscle relaxants, tranquilizers, and pain medications may provide short-term relief but their results are often fleeting and their side effects usually create more symptoms. It’s not unusual for my fibro patients to be taking twelve or more prescription drugs, many of which contribute to “fibro fog,” anxiety, depression, weight gain, and overall fatigue. I’m not against using drugs. But more and more drugs aren’t the answer for fibromyalgia.
Traditional medicine alone offers little long-term relief for fibromyalgia sufferers.
But don’t lose hope.
Dr Rodger Murphree is the founder and past clinic director for a large integrated medical practice located in Birmingham, Alabama. The practice was staffed with board-certified medical doctors, chiropractors, acupuncturists, and nutritionists who combined traditional and alternative medicine. The clinic provided cutting-edge treatments for acute and chronic illnesses. He has specialized in difficult-to-treat patients for the last 10 years. He is a graduate of the University of Alabama Birmingham (UAB) and is a board certified chiropractic physician.
Dr. Murphree has written 5 books for patients and doctors including Treating and Beating Fibromyalgia and Chronic Fatigue Syndrome, Heart Disease: What Your Doctor Won’t Tell You, and Treating and Beating Anxiety and Depression With Orthomolecular Medicine, and Treating and Beating Fibromyalgia and Chronic Fatigue Syndrome: A Patient’s Manual (which is available as a downloadable FREE e-book online (For Kindle, iPad, and other e-Readers). I don’t know if there are any catches as I don’t have an e-Reader, but you might want to have a look – www.fibroexpert.com on the left hand side of the page)
In 2002, Dr Murphree separated from his medical clinic so that he could open his own practice in Birmingham, Alabama. He maintains a busy practice focusing on fibromyalgia, chronic fatigue syndrome, cardiovascular disease, mood disorders, and other difficult-to-treat illnesses. He consults with other physicians, lectures throughout the United States giving educational seminars to patients and healthcare professionals, is a regular columnist for numerous publications, and routinely appears on national radio broadcasts.
Dr Murphree presented a seminar to doctors in Pittsburgh, which was recorded in 9 parts. Although the seminar was delivered to medical professionals, anyone with, or just curious about, FM can follow it:
Dr. Murphree is a frequent guest on local and national radio and television programs including NBC, Fox, and ABC. He writes for several professional and public health related publications. His articles have appeared in The Washington Post as well as peer-reviewed professional journals, including, Townsend Letter for Doctors and Patients, Chiropractic Economics, Alternative Fibromyalgia News Magazine, The American Chiropractor, and Nutri-News.
Dr. Murphree conducts doctor’s continuing education seminars throughout North America helping doctors become proficient in nutritional medicine. Dr. Murphree’s books are available at most books stores and Amazon.com.
For anyone in the area, Dr Murphree’s new clinic is located at 2700 Rogers Drive, suite 100 Birmingham AL. 35209 (205) 879-2383. I expect a report back for the rest of us (please!)